At birth McKenzie Morgan was diagnosed with a rare illness called neuro-metabolic degenerative disorder which meant his brain was slowly shrinking.
The tot would stop breathing up to 10 times a day and doctors told his parents he might not live past his first birthday.
His condition has also left him visually impaired, deaf in his right ear and with a chronic lung disease.
But brave McKenzie, who lived at Glenwood Road, Little Sutton, survived his third birthday on September 28 and died on Tuesday.
Today his parents Kelly and Ian Morgan paid tribute to their "cheeky, happy little boy."
Kelly said: "Although his illness meant he couldn't feel anything he said enough with his eyes.
"He was a brave little fighter and he will be missed greatly."
McKenzie leaves behind his two brothers, Billy and Lloyd.
Dad Ian said: "He was lucky to get to his third birthday.
"He had a good life and always enjoyed himself."
During his life more than £50,000 was raised for McKenzie to enable him to have a specialist downstairs bedroom and other equipment to make his life comfortable.
Kelly said: "We wouldn't have been able to cope with McKenzie if it was not for the help of the public.
"Thankyou for all your support."
The funeral will be held at St Paul's Church in Hooton at noon on Friday, October 17.
Kelly added: "Everybody is to wear blue tops or shirts because he loved blue, and black pants.
"It's family flowers only and any donations are going to Claire House where McKenzie spent the last week of his life."
If you would like write a tribute to McKenzie, leave a comment below or email digitalnews@nwn.co.uk
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